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The Special Kids Links Page



Welcome!

Thank you for visiting The Special Kids Links Page.
Please forward this page to all your friends, and people who will also find it useful, anyone who has a Special Kid or works with one, or is related to one, or goes to school with one....

ADD/ADHD
ADVOCACY AND LAW
ANGER & PARENTING LINKS
AUTISM
BIPOLAR
DEAFNESS
DIABETES INSIPIDUS
FOOD PROBLEMS
OCD
ODD
MEDICATION
MENTAL HEALTH
PIERRE ROBIN SYNDROME
POST-TRAUMATIC STRESS DISORDER
RAD
SPINA BIFIDA
TOURETTE SYNDROME
TRAUMATIC BRAIN INJURY
MOM'S COMEDY BREAK, MAGAZINES, ETC...


ADD/ADHD
Support for ADHD/ODD
Support for Parents of Children with ADHD and/or ODD
What is ADD?
Attention Deficit Disorder: Born to Explore! The Other Side of ADD
The Explorer Webstar: The Other Side of ADD
Attention Deficit Disorder- Feature:12/29/97 The ADD Bill Of rights
Attention Deficit Disorder, Bob Seay Page
Attention Deficit Disorder on Bob's Little Corner of the Web
ADD - ADHD - Attention Deficit Disorder - Welcome To ADDitude.
Attention Deficit Disorder - online tests
Balance Check's - ADD / ADHD Page

ADHD
The Attention Deficit Hyperactivity Disorder Website
ATTENTION DEFICIT HYPERACTIVITY DISORDER DECADE OF THE BRAIN
Attention Deficit Disorder and ADHD: Diagnostic Criteria
CHADD - Children and Adults with Attention-Deficit/Hyperactivity Disorder
CHADD - NEW REGULATIONS "A TRIUMPH" FOR AD/HD
Overview of ADHD by NIH
Information on Attention Deficit Disorder & ADHD for Parents
About Attention Deficit Hyperactivity Disorder - ADD / ADHD

Student.Com: Campus: ADHD PhD
Most of us don't think of Attention Deficit Hyperactive Disorder symptoms as making for success in college. What's college like for ADHD students?
Intelligence and Attention Deficit Disorder
ADHD and Creativity
Amazon.com: A Glance: Adhd a Teenagers Guide
Children and Adults with Attention Deficit/Hyperactivity Disorder
Mental Health Net - Adult ADD Questionnaire
Famous People and Bipolar Disorder.
These individuals have publicly stated that they have experienced this disabling condition, often associated with ADD/ADHD.
ADD: Postive Quotes
You know you have ADD when...

ADVOCACY AND LAW
The Andrew Project
Designed to assist families with disabled children. Enabling them to seek the resources they need to live successfully within the community.
Wrightslaw: The Special Ed Advocate
Up-to-date information about effective advocacy for children with disabilities. Plus free online newsletter.
Advocacy Help
Parent Assertiveness and Advocacy.
World Wide Web Resources for Social Workers
Americans With Disabilities Act Information
Nolo.com Law Book and Software Publisher
Obtaining services for children with attention deficit disorder or ADHD
Learning Disabilities Association of America
CHADD
CHADD Works To Improve the Lives of People With Attention Deficit/Hyperactivity Disorder Through Education, Advocacy, and Support

Federal Register
January 1999 to date ED Announcements Federal Register -- U.S. Department of Education Documents October 1995 to date.
Child Care Centers and the ADA
U.S. Department of Justice, Civil Rights Division, Disability Rights Section.
k-12 Terps - for those in educational interpreting.
Summer and Enrichment Program Listing
The National Association for Gifted Children (NAGC), Summer and Enrichment Program Listing site (Camps).
Your Rights
Advocating, Early Intervention, IEPs, Laws, Links.
Attention Deficit Disorder - Educational Resources for ADD students from About.
LD OnLine:IEP: The Process
LD In Depth: Individualized Education Program
Accomodations For Schools
ADD Friendly OR Toxic Teacher
Awesome Library - Individualized Education Plan
EZ-IEP Top
Learning Disabilities and Denial of Eligibility
Reed Martin, J.D., Special Education Law

Section 504 & IEDA differences
Section 504, Rehabilitation Act of 1973
ADA Q & A: Section 504 & Postsecondary Education

LD OnLine: Learning Disabilities Information & Resources

ANGER & PARENTING LINKS
The Children of Rage
Practical advice for people in contact with children of rage. Common sense approaches to the reasons for rage and how to work with it.
The You Can Handle Them All Web Site
A discipline and behavior management resource.
"Road rage" linked to low rewards at home
...the women who did not engage in aggressive driving also had high levels of home responsibility, but reported receiving emotional rewards or recognition for their contributions.
Sugar Doesn't Make Kids Wild
The new meta-analysis attempts to overcome the shortcomings of smaller studies by pooling them into a larger group so that less obvious effects may be brought to light.
Helping Your Children Learn to Manage Conflict
Materials for Adults Working with Kids Ages 5-12
Family Conflict Resolution
Home : Society and Culture : Social Science
ConductDisorders.com
ADHD, ADD, ODD, CD, Conduct, Disorders, Oppositional Defiance Disorder, Depression, OCD, Bi-Polar.

AUTISM
Michael J. Goldberg, M.D., F.A.A.P.
To better understand and find cures for Autism, CFS / CFIDS and other auto immune diseases.
Autistic Spectrum Disorders
The Kamara Center
Learning and Communication Disorders.
Communication Disorders Treatment & Research Clinic
Child Language Disorders Information Sheet
Autism
Moms On A Mission For Autism
Various Autism Links

BIPOLAR
About Early-Onset Bipolar Disorder
Children usually have an ongoing, continuous mood disturbance that is a mix of mania and depression. This rapid and severe cycling between moods produces chronic irritability and few clear periods of wellness between episodes.
Worksheet: Is Your Child Bipolar?

DEAFNESS
The Deaf Resource Library
Deafness Hard of Hearing - Home Page
Links for Parents of Deaf Children
Deaf Resource Links page
Sign Language Dictionary
Animated ASL Dictionary
SignWritingSite
House Ear Institute
Deaf Spot
Cued Speech Links
Welcome to Deaf Dude's Deaf links
The Listen Up Web Page
Specializing In Information For The Deaf And Hard Of Hearing.
BTNRH Home Page
The National Institute on Deafness and Other Communication Disorders (NIDCD) established the Center for Hearing Loss in Children at Boys Town National Research Hospital in Omaha, Nebraska.
Maryland Technology Assistance Program
The Maryland Technology Assistance Program (MD TAP) provides information on available products, devices, services and other resources to assist individuals with disabilities.

DIABETES INSIPIDUS
Nephrogenic Diabetes Insipidus Foundation
NDI Information & Resources.
Diabetes Insipidus Foundation
For persons who have, or care for someone with, any form of Diabetes Insipidus disorder. The main purpose of this network is to offer support for those surrounded by lack of information on these rare disorders.

FOOD PROBLEMS
Welcome to Club Celiac
What is Dermatitis Herpetiformis?
Food Allergy Sites.
Fast Food Restaurants.
For kids that suffer from Gluten intolerance. Please come in, the door is always open.
Brian's Story
Red Dye and What it's All About.
Alasbimn Journal
Research to support immune dysfunction theory.
Herb Research Foundation

OCD
Frequently Asked Questions About OCD
OCD Related Links
Obsessive-Compulsive Disorder - Panic/Anxiety Disorders Net Links

ODD
Oppositional Defiant Disorder (ODD) and Conduct Disorder (CD) in Children and Adolescents
The Joey Support Group
Homepage for an ADD/ADHD,ODD Child
JOEY's Support Group
A place for parents to exchange ideas about ODD.
JOEY Support Group/Part 2
ODD Checklist, very useful information!
Oppositional Defiant Disorder (ODD)

MEDICATION
RxList
lists 4,000 U.S. products. The search uses fuzzy logic, and assumes your input may be spelled incorrectly and attempts to find close matches. You can perform keyword searches for potential drug interactions, side effects and indications. The site also ranks the top 200 prescriptions.
Infomed Drug Guide
rates 100 drugs by lifetime value, symptomatic value and safety. Also included is information on pharmacology, indications, adverse reactions and interactions, contraindications and cautions, risk groups and reference materials.
Johns Hopkins' U.S. Pharmacopeia
describes the usage and side effects of drugs and dosage variations. It also gives advice on what you should know about the medication and what to ask your doctor.
More Anti Medication Propaganda 06/29/99 - ADD on About.com
Medication Treatment for ADHD and Attention Deficit Disorder
WHAT'S SO GREAT ABOUT ADDERALL FOR TREATMENT OF ADD?
Patented, U.S. Clinically Proven, Non-Prescription, All Natural
Attention Deficit Disorder- Thoughts on ADD Medications
Attention Deficit Disorder - 1/19/99 How Does Ritalin Work?
NaturalHealers -- Naturopathy Q & A
What does a naturopathic physician do? What is the history of Naturopathic Medicine?
Alternative Medicine Herbal Healing
--Acupuncture --Aromatherapy --Touch Therapy --Biorhythms --Music Therapy--Humor: Alternative Calorie Counting --Hypnosis --Tai Chi

MENTAL HEALTH
Misunderstood Kids
Mental Health Net - Psychological Journal Search
Doctor's Guide to the Internet - Doctor's Guide HomePage
American Psychological Association
...Ethical Principles of Psychologists and Code of Conduct.
NAMI ( National Alliance for the Mentally Ill ) Home Page
Specific Learning Disabilities
Mental Health Resources
The Surgeon General Addresses Mental Health.
My Anxiety
The Invisible Disease: Depression

PIERRE ROBIN SYNDROME

POST-TRAUMATIC STRESS DISORDER
Post-Traumatic Stress Disorder

RAD
**In the Spotlight**
When Love isn't Enough Reactive Attachment Disorder is a frightening disorder that creates the inability to trust in children who have been neglected as infants.
Reactive Attachment Disorder.
Library devoted to resources that will teach parents and caregivers.

SPINA BIFIDA
Spina Bifida Central Chat

TOURETTE SYNDROME
Tourette Syndrome and Rage
Does TS cause "rage attacks?" Current research suggests that these attacks are not present in those patients who "just" have TS, but are more likely to occur in those who have comorbid ADHD and/or OCD. The international consortium of clinicians and investigators contributing to the CATS database is providing us with more information on how common or unlikely it is to find these '"rage attacks" associated with different disorders in clinic populations. So far, there hasn't been even one case of "rage" associated with anyone whose sole diagnosis was TS.

TRAUMATIC BRAIN INJURY
Brain Injury Association - Pennsylvania
Brain Injury Association - USA
Traumatic Brain Injury Resource Guide
Brain Injury Resource Center
Brain Injury Medical, Legal, Information Resource
Brain Injury Information Network
Parent Education Network
333 E. 7th Ave. York, PA 17404 (800) 522-5827 (TDD same) Statewide Parent Training and Information Center Information, referral, and advocacy service, Parent guides and workshops. Provides technical assistance, consultation and referral for assistance about special education.
Deborah Delgaldo at the Pennsylvania Protection and Advocacy
She has been working with TBI support groups and has also created a manual entitled "Seven Steps to Success" which helps individuals identify what needs to be considered when starting up a support group. Her phone number is 1-800-692-7443
Anne Sears, who runs the Heads on Straight
support group at St Mary’s Hospital in the Yardley area. Her email is sears@rider.edu. Anne’s husband had sustained a TBI about 15+ years ago and she has been actively involved in the support group for some time.
Ron Palacio
who is the Director of Rehab Services at Success Rehab. They run a family support group in the Quakertown area. He can be contacted at 215-538-3488 or at rpalacio@successrehab.com.
Parent to Parent of Pennsylvania
is a network created by families for families of children and adults with special needs. We connect families in similar situations with one another so that they may share experiences, offer practical information and/or support. Where to Contact us: Telephone: 1-800-986-4550 PA Calls Only Program Director: Wendy Hoke Witmer Main Office: 1-717-540-4722 FAX: 1-717-657-5983 TDD: 1-717-540-4722 Email General Info: info@parenttoparent.org
The Parent Consultant Network (PCN)
is a new initiative dedicated to developing and supporting the expertise and leadership skills of parents of children with disabilities who are being educated in general education settings. The PCN is a network of parents who are available to provide training and technical assistance to parents, schools, institutions of higher education and other parents on emerging best practices in inclusive education. If you are interested in participating as a parent trainer or would like to receive training as a parent from the PCN, please contact Diane Perry at (voice) 215.204.3031 or (email) dperry@temple.edu.
Kathleen Larson
Parent of 15 year old Child TBI. 408 Cherrywood Court, Perkasie, PA 18944, 215-853-2941, moroni105@comcast.net

MOM'S COMEDY BREAK, MAGAZINES, ETC...

Waste vital minutes with the PERPETUAL BUBBLEWRAP

PARENTING TIPS WITH JERRI TAWL
"As a mother, grandmother and great-grandmother, I've parented through the Great Depression, two wars, and the advent of this Internet thingamabob. As I like to say, "Been there, done that, glad to be dying soon!" So, you got a parenting question? Spit it out. The question, not your teeth, sonny. I ain't got forever you know..."

Parenting Tips (Humor)
Preparation for parenthood is not just a matter of reading books and decorating the nursery.

Residential Organizing
How to Survive When Everything Around You Is Crazy

Homeschool Information
Kid's Art

Living With Chronic Pain
Cholesterol Edition Heart Manual
consists of over 100 pages of vital information.
High Blood Pressure Edition Heart Manual
consists of over 172 pages of vital information.
The Poison Page
The CDC found many chemicals in our bodies which apparently leach into our systems through products always thought to be completely innocuous.
Internet Mental Health
The 52 most common mental disorders including description, diagnosis, treatment and research findings.The 67 most common psychiatric drugs. Online diagnosis. Links to other mental health sites.
The Australian Chemical Trauma Alliance Inc.
ACTA maintains an ongoing watch on the situation of chemical victims in other developed nations.
The Chemical Papers
Secrets of the Chemical Industry Exposed.
First National Report
on Human Exposure to Environmental Chemicals
EPA ZIP Code Search
Check your zip code for Superfund sites, drinking water, air pollution, toxic releases, hazardous waste and water discharge permits. It will tell you who is handling dangerous chemicals in your neighborhood, legally, or who did it in the past, possibly illegally.
NORD
A great warehouse of info for all types of rare or semi rare disorders.
National Crime Prevention Council
The McGruff page for kids safety tips.


Google


Your child might have an IEP.... If...

If you have ever attended a meeting at school with 25 professionals... your child might have an IEP.
If you are the only one wearing jeans.... your child might have an IEP.
If these professionals speak a different language.... your child might have an IEP.
If the meeting room was the size of a closet... your child might have an IEP.
If you have ever been asked, "do you think your child is the only one in the district?"...your child might have an IEP.
If you have ever heard, "we do not have money for that!"... your child might have an IEP.
If you have ever been called an "overprotective, hysterical parent" or an "uninvolved parent"... your child might have an IEP.
If you have ever been told your child "will just grow out of it", "is lazy", "slow", "irresponsible", "immature and/or sensitive" etc...etc... your child might have an IEP.
If you feel you have walked into "Assertiveness Training 101" by accident...your child might have an IEP.
If you have ever been screamed at by a school official...your child might have an IEP.
If you have ever been told your child will be lucky to grow up and dig ditches...your child might have an IEP.
If it has ever been suggested to move to another District...your child might have an IEP.
If you have ever been invited to home school your child... your child might have an IEP.
If you have ever called the school and asked for your child and were told "we do not have anyone here by that name..." your child might have an IEP.
If your family is ever discussed in the teachers lounge... you might have an IEP.
If every time you call the school board office, the person you need to talk you is in a meeting...you might have an IEP.
If a meeting with the school has ever been rescheduled more than twice to the time you definitely can not come...your child might have an IEP.
If you have ever been patted on the shoulder and called "honey" by the principal...your child might have an IEP.
If it has ever been suggested all your child needs is a "good spanking to straighten him/her up..." your child might have an IEP.
If you have been asked by a teacher to "just sign it!"... your child definitely has an IEP...